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Apert Syndrome

Thursday, August 23, 2012

The Benefit Beat

Community Steps Up for Child with Rare Syndrome

Eight-month-old Mary Cate Lynch has a rough road ahead as one of only 25 U.S. children born with Apert Syndrome each year. Her parents are spreading the word about Apert—while everyone shares their love for the little girl.

Fresh from her midday nap, 8-month-old Mary Cate Lynch bounces happily on her mother Kerry's lap. She giggles and reaches for ruffles on her shirt, and peeks at the stranger on the couch next to her. To Mary Cate, life is as simple as the woman holding her, kissing her cheek and stroking her hair.  Her innocence is bliss for Beverly resident Lynch and husband Chris. Mary Cate, born with the rare craniofacial syndrome Apert Syndrome, has a long—likely painful—journey ahead of her. She is one of 25 children born with Apert each year in the United States. The disease is visible in malformations of the skull, face, hands and feet. From now until the age of 20, "MC" will face up to 60 corrective surgeries and numerous therapies, some of which …

Monday, August 20, 2012

The Benefit Beat

Community Packs Bourbon Street for Child with Rare Syndrome

Nearly 2,000 people filled 115 Bourbon Street Saturday, Aug. 18, to shower love over Mary Cate Lynch, an 8-month-old born with rare Apert Syndrome.

This is South Side, some said. This is who we are.  Nearly 2,000 Southland residents filed into 115 Bourbon Street to show support for one tiny member of the community—8-month-old Mary Cate Lynch. Mary Cate, whose family resides in Beverly, was born with Apert Syndrome. She is one of 25 children born in the U.S. each year with the syndrome, which is visible in malformations of the skull, face, hands and feet. Friends and family organized the fundraiser to help offset medical costs for Mary Cate, who will face up to 60 corrective surgeries and numerous therapies into her 20s—some of which have already begun. Read more about Mary Cate's condition and the journey ahead of her.  Mary Cate's mother Kerry, an Evergreen Park native and father …

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